Being a voice for patients

To represent the needs of patients, we root our policy and public affairs work in the lived experience of those on their transplant journey.

Opportunities to contribute

Working alongside blood cancer and blood disorder patients, we ensure their first-hand insights guide us as we influence public awareness and push for positive change in services.

Being able to speak from experience, the voices of patients, families and carers couldn’t be more important to shaping Anthony Nolan’s policy agenda. If you can contribute to this vital work, we welcome you to get involved through one these two paths:

  • Policy Insights Panel – made up of patients at different stages of their transplant journey, the panel works alongside Anthony Nolan to ensure stem cell transplant patients across the UK have vital access to the treatment, care and support now and in the future. Find out more about the Policy Insights Panel and how to join here.
  • Patient and Families Panel – the Patient Services team at Anthony Nolan oversee this panel. They email the Panel every few weeks with projects that you might like to be involved in and learn more about your personal experiences. Find out more about the Patients and Families Panel and sign up here. 
  • Links to surveys – We sometimes ask patients and family members to take part in surveys which help shape and inform our policy work. We currently do not have any surveys open, please check back again soon as we often seek patient and families views in our policy and public affairs work.

SCCG Citizens' Jury

Alongside members of the Specialist Cancer Charities Group, Anthony Nolan convened a citizens' jury to develop key recommendations for the Government on how to build sustainable cancer services that are fit for the future.

Citizens' juries offer a pioneering approach to policymaking, empowering individuals with lived experience to actively influence the policies that affect their lives. This report aspires to serve as a blueprint for meaningfully integrating patient voices into the policymaking process, encouraging government, policymakers, and charities to embrace this model in shaping healthcare policies. Find out more about the Citizens' Jury.