About the APPG
The APPG provides a forum for Members of Parliament to discuss the most important issues around stem cell transplantation and advanced cell therapies. It provides a space for open conversation between elected officials, the NHS and other public bodies, and people with experience of stem cell transplant, CAR-T therapy and similar treatments.
Anthony Nolan provides the secretariat to the APPG on Stem Cell Transplantation and Advanced Cellular Therapies.
APPG Priorities & Membership
Priorities
Every year, the members of the APPG SCTACT review their priorities and agree upon a set of goals for the year ahead. The Group’s most recent priorities include:
- Raising awareness of the importance of psychological support for stem cell transplant patients, their families and caregivers throughout their treatment pathway.
- Advocating for support for stem cell transplant and CAR-T therapy patients struggling with the cost of living.
- Raising awareness of the potential for cell and gene therapies to benefit patients with sickle cell.
Led by the Chair, members meet throughout the year and make key decisions on activity and policy direction for the Group.
APPG Members
- Clive Betts MP, Chair
- Sorcha Eastwood MP, Vice-Chair
- Rt Hon John Glen MP, Officer
- Baroness Morgan of Drefelin, Officer
- Baroness Brinton
- Dawn Butler MP
- Steve Darling MP
- Baroness Finlay of Llandaff
- Allison Gardner MP
- Baroness Healy of Primrose Hill
- Pippa Heylings MP
- Baroness Hollins
- Ruth Jones MP
- Afzal Khan MP
- Rachael Maskell MP
- Lord Mendelsohn
- Lord Moynihan of Chelsea OBE
- Baroness Ritchie of Downpatrick
- Baroness Thornton
- Liz Twist MP
- Rt Hon Sir Gavin Williamson MP
- Steve Yemm MP
Latest News & Events
Cell and gene therapies for sickle cell
In January 2023, the APPG held a panel discussion, co-chaired by Mark Tami MP and Janet Daby MP, to explore access to stem cell transplant and gene therapies for people with sickle cell.
During the roundtable, it became clear that improved awareness of and access to these treatments for severe sickle cell is needed. As a result of the meeting NHS England have agreed to review the commissioning guidelines for stem cell transplants for sickle cell patients with a view to addressing any inequalities in access.
Cost of living and patient travel costs
Many stem cell transplant patients and families are struggling to meet the rising costs of travel, food, electricity and other basics. The APPG held a public roundtable in May 2023 to discuss this issue and hear directly from those affected.
Chair of the APPG, Mark Tami MP, went on to secure an adjournment debate in which he called on the government to take action to support those patients in the greatest need.
Reports
No Patient Left Behind: The Barriers Patients Face When Accessing Treatment and Care
In 2020, the APPG SCTACT launched a report, No Patient Left Behind, following an inquiry into barriers which patients face when accessing treatment and care.
The report identifies five themes of barriers patients may face: socio-economic barriers; cultural barriers; geographical barriers; race, ethnicity and discrimination; and complex health systems, health literacy and education.
Contact Us
Anthony Nolan provides the secretariat for the APPG SCTACT and work closely with its members to support the APPG's work. For more information, or if you have any questions, please get in touch.
This is not an official website of Parliament. It has not been approved by either House. APPGs are informal groups of Parliamentarians with a common interest in particular issues. The views expressed are those of the group.