Psychological support for stem cell transplant patients

Episode 3

In the latest episode we spoke to Haematology Counsellor Shelia Hegarty about her role supporting transplant patients at University College London Hospital.

We discussed the huge emotional impact that a transplant can have, and how patients can manage their well being and when to ask for further support.

Full transcript (auto-generated)

+
-

0
00:00:00.160 --> 00:00:07.238
Welcome to the third episode of the patient services podcast at Anthony Nolan my name is Billy and I'm the patient

1
00:00:07.300 --> 00:00:09.660
communication and insight coordinator.

2
00:00:10.300 --> 00:00:17.305
This series of podcasts we hope to bring you insight and support into the experience of having a bone marrow or stem cell

3
00:00:17.363 --> 00:00:18.000
transplant.

4
00:00:18.840 --> 00:00:25.591
We'll be looking at what life before during and after transplant can be like talking to health professionals for tips and

5
00:00:25.646 --> 00:00:31.840
advice and patients have been there themselves will be sharing their stories and personal experiences with you.

6
00:00:32.100 --> 00:00:34.700
We hope you find them helpful and informative.

7
00:00:36.860 --> 00:00:45.049
today I'm joined by Sheila Hegarty a haematology councillor working as part of the haematology psychology and counselling

8
00:00:45.117 --> 00:00:47.960
team at University College London Hospital

9
00:00:48.180 --> 00:00:54.189
Having a stem cell transplant is a life-changing event and dealing with it impact on your everyday life can be a

10
00:00:54.243 --> 00:00:54.780
challenge.

11
00:00:55.660 --> 00:01:01.868
The emotional rollercoaster often described to us by patients to contact Anthony Nolan can be really hard to navigate

12
00:01:01.921 --> 00:01:03.460
without support and guidance.

13
00:01:04.040 --> 00:01:10.948
Today's Sheila will be talking to us about her experiences of supporting the specific patient group and giving us her

14
00:01:11.007 --> 00:01:18.211
expert insight into the psychological concerns experienced by transplant patients hello Sheila thank you for speaking with

15
00:01:18.270 --> 00:01:22.640
us today. It's very generous of you to give up your time for Anthony Nolan

16
00:01:23.440 --> 00:01:28.440
Can you start by telling me how you came to specialise in counselling for haematology patients?

17
00:01:28.720 --> 00:01:37.092
Sure and I'm very glad to be here to talk about this. Thank you for inviting me. I've been working at uch for 12 years and

18
00:01:37.161 --> 00:01:39.220
when I started I was the only.

19
00:01:39.860 --> 00:01:41.960
counsellor working in the department in haematology

20
00:01:42.880 --> 00:01:50.630
Part of my role, I was asked to come to develop the role within haematology across inpatients and outpatients and right

21
00:01:50.695 --> 00:01:58.575
through the journey. So that's happened to us. We have a much larger department we are four in the team. So we have three

22
00:01:58.640 --> 00:02:06.521
cancers one psychologist and a couple of trainees always there as well and I think that reflects the complexity of people

23
00:02:06.586 --> 00:02:11.080
are going through and the growing needs for the Liverpool yeah, yeah.

24
00:02:12.560 --> 00:02:21.152
Are there any common psychological issues or concerns you've noticed in those patients that you see who go through

25
00:02:21.227 --> 00:02:22.660
transplant I think.

26
00:02:22.800 --> 00:02:31.293
the most important thing to say first is that this is a huge and daunting experience for most people going through it

27
00:02:31.366 --> 00:02:39.642
absolutely it comes on the back of having had a diagnosis and and a lot of other treatment and then facing this is

28
00:02:39.715 --> 00:02:43.200
daunting and it's huge, so it's very natural and

29
00:02:44.280 --> 00:02:51.880
Normal to feel a lot of things of the feelings I T to feel worried to feel low have a range of emotions really.

30
00:02:52.780 --> 00:02:59.628
Which people experience and which are common to most people that people will experience them in different ways at

31
00:02:59.689 --> 00:03:06.780
different times across that that journey really from diagnosis right through treatment and a specific concerns about.

32
00:03:07.060 --> 00:03:12.860
the transplant process or elements of the transplant that you find that the patients you see

33
00:03:13.380 --> 00:03:14.580
I want to talk to you about

34
00:03:16.420 --> 00:03:24.190
Very very much from person to person which again is human really isn't it? But I think they range from people being very

35
00:03:24.255 --> 00:03:32.155
worried about the treatment itself and the impact of that and people are told by clearly. I know by by the medical team in

36
00:03:32.220 --> 00:03:40.120
advance that they are facing a lot and that there will be side effects so people are aware of that and worried about that.

37
00:03:40.300 --> 00:03:45.100
There are also often worried about family but partner's children.

38
00:03:45.580 --> 00:03:46.680
parents

39
00:03:47.360 --> 00:03:50.160
And so are very aware of trying to protect them as well.

40
00:03:51.480 --> 00:03:52.380
people

41
00:03:52.580 --> 00:04:00.575
The people are mainly concerned about getting through this about knowing this is going to give them a chance of life of a

42
00:04:00.641 --> 00:04:03.880
cure and so they want to do it but also wearable.

43
00:04:04.120 --> 00:04:08.020
goes with it so I guess in the beginning is often a lot of

44
00:04:09.600 --> 00:04:12.000
Worry but also hope about this will be.

45
00:04:12.340 --> 00:04:14.840
exactly

46
00:04:16.140 --> 00:04:18.740
And so I think that changes along the way.

47
00:04:19.100 --> 00:04:21.500
At different times and at different stages in the process.

48
00:04:22.020 --> 00:04:24.620
No worries will be different at different times.

49
00:04:25.760 --> 00:04:34.960
Is there a time in the process via pre during or post transplant that people tend to need the most support?

50
00:04:35.340 --> 00:04:42.762
I think that fairies again as I said from individual to individual but I think one of the things that can surprise people

51
00:04:42.824 --> 00:04:50.001
quite a lot is the post transplant we get a lot of referrals and that's open when people need most support ok because

52
00:04:50.062 --> 00:04:57.240
although the beginning of the process is shocking they've been through diagnosis tonight facing this extra treatment.

53
00:04:58.200 --> 00:04:59.000
they're kind of

54
00:04:59.260 --> 00:05:05.482
You're on a journey really that kind of told her they have to go through there weather going to be in hospital. So they

55
00:05:05.535 --> 00:05:11.862
hopefully make preparation for that answer his staff to clinical nurse specialist and someone will help them with that so

56
00:05:11.915 --> 00:05:16.360
that is its own challenges and then people are going through it getting through that.

57
00:05:16.600 --> 00:05:23.800
When they leave hospital after a long period in a can be weeks can be longer and going home when people.

58
00:05:24.220 --> 00:05:31.901
Relatives friends are very excited. I'm feeling coming through this is really good news and actually they're trying to

59
00:05:31.966 --> 00:05:39.648
readjust to pick up the pieces of their life 024 - 4 - life and I can be a very different experience often and I think

60
00:05:39.713 --> 00:05:43.620
that's one of the things that people aren't prepared for ok.

61
00:05:43.940 --> 00:05:50.540
I think it can be quite difficult to prepare people for that and so they come to you. So they can be quite ready for it.

62
00:05:50.980 --> 00:05:58.660
Anticipate impact it might have some kind of come to see the medical term for the clinic check-ups to and talk about those

63
00:05:58.723 --> 00:06:06.151
kind of things that are still going on maybe long-term fatigue may be feeling that just having the energy they used to

64
00:06:06.214 --> 00:06:13.894
have feeling still on well settling to perhaps a different way of life. Not maybe being at work exactly not being off work

65
00:06:13.957 --> 00:06:21.575
to look after their children themselves in the same way yet, so a long stage of recovery and I think a lot of a we can do

66
00:06:21.638 --> 00:06:29.255
that is really put that in perspective and help knowledge that this is really difficult but actually they can get through

67
00:06:29.318 --> 00:06:36.809
it and that it's new it's different and it will be a different kind of a new normal really as we call it. Yeah, so that

68
00:06:36.872 --> 00:06:37.880
would be when we

69
00:06:38.280 --> 00:06:44.259
A lot of people would come into our service and have some work done then, but we also see people in the beginning some

70
00:06:44.310 --> 00:06:45.780
people might be most anxious.

71
00:06:45.960 --> 00:06:55.251
Is very kind of coping mechanisms for anxiety coping skills, so that's one of the ways we be helping people prepare in

72
00:06:55.330 --> 00:06:55.960
advance.

73
00:06:56.740 --> 00:07:00.040
We also see people on the ward when people might be ill.

74
00:07:00.320 --> 00:07:10.792
Worried about family or bored or stuck in there and feeling isolated in a room on their own so we be helping them through

75
00:07:10.879 --> 00:07:15.120
that stage as well and of course also see family.

76
00:07:15.480 --> 00:07:22.877
that was my next question actually, so do you see both patients and family and you know if you do see family members what

77
00:07:22.939 --> 00:07:27.280
kind of issues and concerns to find that they have in comparison to the

78
00:07:27.780 --> 00:07:29.880
We do see both we offer.

79
00:07:30.760 --> 00:07:38.548
We offer service to both sometimes we see people together with couples. We might see people with their family in their

80
00:07:38.614 --> 00:07:40.660
family set up with children and

81
00:07:42.100 --> 00:07:47.300
there's a kind of bit of mutual concern from the patient and the family for each other so

82
00:07:47.920 --> 00:07:54.920
The patient will also be that will often be very concerned and worried about their family members their children perhaps

83
00:07:54.978 --> 00:07:59.820
their partner as well as their own individual worries, but then also the relatives.

84
00:08:01.100 --> 00:08:05.500
You know the partner the parents the children will be very worried and will not want to.

85
00:08:05.920 --> 00:08:12.295
Put anything on the patient but also find it quite difficult often to express. What might be going on for them because

86
00:08:12.349 --> 00:08:17.320
they just want to be there for their loved one really so they'll be talking about their own.

87
00:08:17.500 --> 00:08:23.819
But also there their personal and the person who's the patient their worries and part of the work. We would do that would

88
00:08:23.871 --> 00:08:29.877
be kind of illicit from them have their own worries or how they see the future the impact on their life. What's the

89
00:08:29.929 --> 00:08:35.100
weather like on the patient because it does have a really far-reaching impact and that's something.

90
00:08:35.620 --> 00:08:41.499
You know with the work that we do with distance to try and prepare them to understand that the support network is

91
00:08:41.551 --> 00:08:43.320
incredibly important to a patient.

92
00:08:44.420 --> 00:08:49.020
And so do you routinely see patients pre transplant?

93
00:08:49.440 --> 00:08:57.280
Not routinely, I wouldn't say although I think it's something that increasingly becoming evident is quite important

94
00:08:57.349 --> 00:08:59.940
because although people are given a 4.

0
00:00:00.020 --> 00:00:00.820
download

1
00:00:00.960 --> 00:00:05.460
What to expect I don't think they're quite given a full.

2
00:00:06.280 --> 00:00:14.336
Picture of understanding the psychological impact on the emotional impact on them you know of being isolated and I've how

3
00:00:14.403 --> 00:00:22.526
they can build on their own existing resources right to get into that. I thought I'd like to do we have done a survey with

4
00:00:22.592 --> 00:00:30.649
our patients in uch people were post-transplant and white post-transplant people at different stages and one of the today

5
00:00:30.715 --> 00:00:38.639
felt was really large. He said he hasn't been emotionally and psychologically prepared enough physically they felt they

6
00:00:38.705 --> 00:00:46.762
had but not psychologically they felt it would be helpful so it's something we're working with the team to try and see if

7
00:00:46.828 --> 00:00:54.885
we do half a day that would be very helpful very helpful and have a bit of running time to a transplant volume to do that

8
00:00:54.952 --> 00:00:59.280
and I think it could help people build on their own resources and

9
00:01:00.000 --> 00:01:07.768
Prepare themselves for what's ahead and take back a bit of control of it in that sort of preparation, so psychologically.

10
00:01:07.832 --> 00:01:15.472
I think some of the definitely something that didn't work we do with patients that people often to say as you just said

11
00:01:15.536 --> 00:01:21.700
that they didn't feel psychologically prepared and that's something people come to us with also.

12
00:01:22.260 --> 00:01:30.658
Because I think as you say that lack of control is something that very big and people will be out through that process and

13
00:01:30.727 --> 00:01:35.960
to just have some charge of something yeah is so helpful Foundation exactly.

14
00:01:37.820 --> 00:01:40.420
Can you tell me what kind of local support?

15
00:01:40.680 --> 00:01:42.580
You would refer your patients to.

16
00:01:43.660 --> 00:01:46.160
I think that's a good question because we

17
00:01:46.520 --> 00:01:52.120
I work in central London with a very well resource centre. We have patients coming from a long way away.

18
00:01:53.720 --> 00:02:00.020
And stay with us, they have a good service with lucky really off and people going back home.

19
00:02:00.400 --> 00:02:07.834
It is more difficult to have to say now we as a team carry on we will have to telephone sessions with people so we can

20
00:02:07.897 --> 00:02:11.300
offer that the other thing we look we look for people.

21
00:02:11.940 --> 00:02:20.736
Services and Resources locally there may be support groups in the local area. We would liaise with the GP if we felt that

22
00:02:20.809 --> 00:02:29.387
was important. So we will do that. Play some work. I look about the services for people. It's not always easy. We yes.

23
00:02:29.460 --> 00:02:35.640
We're on a support group for all haematology patients, so we don't specifically have.

24
00:02:36.120 --> 00:02:37.420
bone marrow transplant

25
00:02:38.040 --> 00:02:44.897
Support group but we have a general one which covers all haematological conditions and we meet once a month for a couple

26
00:02:44.954 --> 00:02:51.868
of hours and then the group themselves go off and have a meal afterwards which is it means for them. They have people who

27
00:02:51.925 --> 00:02:58.668
understand to talk to and then they go off and do something social but from within the resort you know connections are

28
00:02:58.725 --> 00:02:59.240
built up.

29
00:02:59.380 --> 00:03:02.380
and people can really link up and

30
00:03:02.720 --> 00:03:09.386
Have very useful conversations and help each other with different resources that they have used themselves to get by and

31
00:03:09.442 --> 00:03:16.053
so how does it work having he say it covers the broad spectrum of haematology does it work quite well having tried some

32
00:03:16.108 --> 00:03:19.220
transplant patients. I'm not transport patients in that.

33
00:03:19.640 --> 00:03:27.546
In my experience, it works very well sometimes people want something more specific so we might have somebody in on that

34
00:03:27.612 --> 00:03:35.718
particular issue, but usually it works well and people mutually supportive facilitating at but it's very much about mutual

35
00:03:35.785 --> 00:03:39.240
support and so people have a more chronic condition.

36
00:03:40.160 --> 00:03:45.904
May be very helpful to people having more acute where they can kind of see each other's perspective and gain from each

37
00:03:45.953 --> 00:03:47.560
other. I'm certainly I would say.

38
00:03:47.800 --> 00:03:54.979
Friendships have built up out of that and a lot of respect for each other's position and the kind of greater understanding

39
00:03:55.038 --> 00:04:00.100
of the fact that they can be different difficulties but humanly people can each other.

40
00:04:01.060 --> 00:04:06.460
And do you think everyone having a transplant should have access to your kind of support?

41
00:04:06.780 --> 00:04:07.880
I think

42
00:04:08.640 --> 00:04:10.540
A lot of people don't need our support.

43
00:04:11.020 --> 00:04:14.420
But I think the fact I think people should all be aware of it.

44
00:04:14.600 --> 00:04:20.300
And I think the most important thing really is to let people know that it's as I said earlier on.

45
00:04:21.200 --> 00:04:23.500
It's very natural and normal to have.

46
00:04:23.740 --> 00:04:26.440
a lot of feelings of anxiety fear worry

47
00:04:27.200 --> 00:04:29.700
Etc going into the process like this.

48
00:04:29.940 --> 00:04:37.721
And so the people are ever so kind of becomes part of the conversation that that makes it acceptable to support. It's ok

49
00:04:37.786 --> 00:04:45.697
to ask for it. It's ok to say I'm feel this thing. I'd like to talk to somebody that becomes much more as natural really I

50
00:04:45.761 --> 00:04:53.478
seen the doctor yet as natural as having your nurse as natural having a temperature done if this is something that spot

51
00:04:53.543 --> 00:04:54.840
the process as well.

52
00:04:56.300 --> 00:04:57.000
and

53
00:04:57.520 --> 00:05:06.001
Why do you think if you come across this is all? Why do you think that some patients or family members are reluctant to

54
00:05:06.073 --> 00:05:10.920
access psychological support is something we experience and I think.

55
00:05:11.220 --> 00:05:13.620
for a lot of people coming into this they would never

56
00:05:14.060 --> 00:05:19.860
Really good nearest psychologist or counsellor, so for them it may mean something like.

57
00:05:20.100 --> 00:05:24.200
What's wrong with me? I must have mental health problems and stigma.

58
00:05:26.480 --> 00:05:33.466
So we would often like to see people just too kind of in the beginning explained a bit of our service but saying initially

59
00:05:33.524 --> 00:05:39.480
a chat and people will often take to it is something people worried not going to be as a patient I want.

60
00:05:39.680 --> 00:05:46.228
Experiences once you get over that barrier people really do use the service very well and see as a talking coping

61
00:05:46.286 --> 00:05:50.980
definitely fancy. It is adding to their toolkit really of resources on their own.

62
00:05:52.060 --> 00:05:58.360
alarm going to be more autonomous and more independent cos I can build up their own resources and from the

63
00:05:58.600 --> 00:06:02.500
Relative for family point of view I think they're just so.

64
00:06:03.120 --> 00:06:10.990
Holding everything together for the patient and worried about if they start talking about Monday open up and will there be

65
00:06:11.055 --> 00:06:18.797
hope there's a lot of responsibility and onus on the person who is until you have to keep clearing definitely yeah, so I

66
00:06:18.861 --> 00:06:26.345
think we would be very aware of that working with people that we would you know want to support them and ignore them

67
00:06:26.410 --> 00:06:34.023
together and do a lot on their plates as well, but they have to take care of themselves in order to achieve that yeah,

68
00:06:34.087 --> 00:06:35.120
yeah definitely.

69
00:06:35.720 --> 00:06:42.094
What advice would you give to patients who are about to go through or are going through a transplant about supporting

70
00:06:42.148 --> 00:06:43.620
themselves psychologically.

71
00:06:44.020 --> 00:06:50.573
I suppose for me the most important thing to do is say that this is your time and you really have to look after yourself

72
00:06:50.627 --> 00:06:51.720
for a lot of people.

73
00:06:52.520 --> 00:06:54.620
I would say I'm I'm being selfish.

74
00:06:55.940 --> 00:07:02.323
I need to be somebody who generally look after other people or I don't want to put this on my family and I would say this

75
00:07:02.376 --> 00:07:08.707
is important. You have to look after yourself right now and be kind of if you like selfish about that because that's the

76
00:07:08.760 --> 00:07:15.091
only way you're going to get through this and that's actually helpful for everyone and it's most helpful for friends and

77
00:07:15.144 --> 00:07:19.840
family to know how they can be helpful so the more you can let people know what helps me.

78
00:07:20.580 --> 00:07:25.780
Send them or other people like that and want to help I don't really know what to do. I think.

79
00:07:26.080 --> 00:07:33.408
I always work with people in terms of their own, but I called toolkit of resources so helping people whatever that maybe

80
00:07:33.469 --> 00:07:34.080
maybe Waze

81
00:07:34.300 --> 00:07:38.000
Don't come through adversity in the past it may be that they enjoy.

82
00:07:38.480 --> 00:07:44.941
I don't know gone for a walk reading music so any of the things they enjoy building on that offers enjoyable about that.

83
00:07:44.995 --> 00:07:48.280
What can you use from that to get yourself through this time?

84
00:07:49.140 --> 00:07:55.262
Being aware that they're going into a room for a period of time in hospital bring with you whatever might be comforting

85
00:07:55.313 --> 00:07:56.240
whatever might be.

86
00:07:56.560 --> 00:08:00.460
Supportive be very clear as well.

87
00:08:00.660 --> 00:08:06.960
Really you're going to be not well for a while and you need to look after yourself and let people know that.

88
00:08:07.300 --> 00:08:08.900
you can let them know but the

89
00:08:09.100 --> 00:08:16.628
Play demands of you so people can find it very difficult to do and I know for us we often come across people of any state

90
00:08:16.690 --> 00:08:24.218
Stewart transplant without has to be reiterated really and again have they got yeah? Well, I suppose you know when people

91
00:08:24.280 --> 00:08:31.000
have a diagnosis. It's a huge shock as you say and then often times they move into transplant quite quickly.

92
00:08:32.900 --> 00:08:39.988
Before any of that happen to them they had a life and they had responsibilities and they had a role within their family

93
00:08:40.047 --> 00:08:47.076
within the workplace and it must be so difficult so let go of all of that but as you say the focus needs to be on them

94
00:08:47.135 --> 00:08:54.343
getting better and there is an acknowledgement in that is what you said isn't there of the loss of that I hope you lot of

95
00:08:54.402 --> 00:08:57.500
that comes back. I'll be at maybe a different way. X

96
00:08:58.180 --> 00:08:59.680
But there is a loss.

0
00:00:00.000 --> 00:00:04.700
Change under some importance does a lot of important thing about acknowledging that.

1
00:00:04.980 --> 00:00:10.480
And helping them so that they can also get through this and they have a huge amount of resource.

2
00:00:11.300 --> 00:00:18.100
That can be that would be hugely vary from person to person, but there's no rule book for this.

3
00:00:18.580 --> 00:00:22.680
Is very much about what helps you what happened to you when it's difficult.

4
00:00:23.500 --> 00:00:24.600
Let's build on map.

5
00:00:24.980 --> 00:00:34.880
How essential is your role in post transplant recovery? I think a 2G sensual I mean I've certainly.

6
00:00:35.080 --> 00:00:42.285
Had a referral for example for a patient who was 6 years post-transplant local importers of was he was having someone

7
00:00:42.346 --> 00:00:49.859
going physical difficulty but that had also impacted on his life now broadly and on how he felt about himself and that was

8
00:00:49.921 --> 00:00:56.880
you to be important and we did some really valuable work together which he certainly has acknowledged so I think.

9
00:00:57.180 --> 00:01:05.220
It's almost as I said earlier. I think it's almost at that point that I feel worse most the most used yeah, because that's

10
00:01:05.286 --> 00:01:11.680
the huge adaptation to a different life and I think of someone diagnosed initially does the shop.

11
00:01:11.800 --> 00:01:18.426
when does getting through the treatment and supported in that by the medical and nursing staff and then is afterwards and

12
00:01:18.480 --> 00:01:18.700
it's

13
00:01:18.860 --> 00:01:25.929
1-hour what? What do I do now and it said that stage that mentally and emotionally people are beginning to process? What's

14
00:01:25.987 --> 00:01:30.160
happened and kind of moving from a shock to who what was that all about?

15
00:01:31.500 --> 00:01:33.700
I'm really being aware of the impact cause.

16
00:01:33.840 --> 00:01:35.440
cost of diagnosis and

17
00:01:36.980 --> 00:01:43.508
Discussions about treatment, it's all about getting through this and living but later on as well. How do I live and what

18
00:01:43.562 --> 00:01:43.780
do I

19
00:01:44.360 --> 00:01:51.395
What is minute I'm like and how do I manage that and just kind of I guess letting the plate settle after the earthquake

20
00:01:51.454 --> 00:01:58.607
really it feels to me after it was a bit more space for that. It's kind of like the mind has had a time to catch the body

21
00:01:58.666 --> 00:02:03.160
has gone through really yeah, I suppose there are some people who live with.

22
00:02:04.080 --> 00:02:12.471
chronic side effects such as chronic fatigue and he said physical symptoms and so there is a huge period of adjustment and

23
00:02:12.540 --> 00:02:18.180
you're suddenly away from the hospital and away from all of the set of support and

24
00:02:18.440 --> 00:02:26.541
People to talk to you, you haven't those earliest ages so I can really see how post-transplant is it's really essential to

25
00:02:26.607 --> 00:02:26.940
know.

26
00:02:27.140 --> 00:02:34.688
Babies people like yourself that they can access to begin to build up confidence again in the fact that my confidence in

27
00:02:34.751 --> 00:02:38.840
your body in your life in the new way and even with side effects.

28
00:02:39.520 --> 00:02:46.863
Graft versus host disease the different things people may experience even with that actually I can work this out and how

29
00:02:46.924 --> 00:02:47.720
do I do that?

30
00:02:48.960 --> 00:02:55.047
Thank you so much for speaking with us today. It's been really interesting to hear more about the work that you do. Thank

31
00:02:55.097 --> 00:02:57.160
you very much for inviting me. Thank you.

32
00:02:58.020 --> 00:03:05.740
Before we sign off. I just want to tell you about some of the ways Anthony Nolan provides other kinds of support the

33
00:03:05.807 --> 00:03:13.660
listeners who feel they might need some guidance managing their emotional well-being you can find more information and

34
00:03:13.727 --> 00:03:18.120
Resources available to order for free through our website www.org.

35
00:03:18.980 --> 00:03:25.684
Some patients find that connecting with others have been through transplant can improve how they feeling themselves for

36
00:03:25.740 --> 00:03:30.980
online support you can join our patients and families forum to talk to other people like you.

37
00:03:31.380 --> 00:03:38.475
We also offer a peer support telephone service where you can speak to a transplant recipient who's at least 2 years

38
00:03:38.537 --> 00:03:40.080
post-transplant by phone.

39
00:03:40.740 --> 00:03:51.360
Would you like to find out more about this and other ways we can support you and your family please contact the patient

40
00:03:51.449 --> 00:03:57.340
team at patient info at anthonynolan.org or call 03303030030 chat.

41
00:03:57.440 --> 00:03:59.040
Thank you for listening today.